Pre Eclampsia support

For Women & their families who have suffered with Pre Eclampsia, Eclampsia, HELLP syndrome, Pregnancy induced hypertension (PIH) and related conditions.
 
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 diagnosed with hellp, but placenta fine!

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emmie
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PostSubject: diagnosed with hellp, but placenta fine!   Thu 03 Dec 2009, 7:07 pm

Hi I'm new to this forum and it has been such a relief to find it!
This is my story: At the beginning of November I went for a routine midwife appointment, I'd had no problems and an 'easy' pregnancy previously to this. During the appointment I was found to have really high blood pressure 190/120 and 4+ protein in my urine. Anyway I was sent straight to hospital without me realising how serious everything was.
Once at hospital I was admitted, put on medication, had routine blood tests and told I would have to remain there until my baby was born. I was also sent for an additional scan where they told me my baby wasn't feeding properly and only measured 21 weeks when he should have measure 24+ weeks. We were told it didn't look good and even though they were aiming to hold me on as long as possible, to get to 25 weeks would be good. We also went for a look around the neonatal unit to prepare ourselves. Anyway, My blood preesure settled for three days, but on the third night it suddenly shot up again and I was told I would have to be induced to save my life. I was induced and just past midnight on that night my baby was born asleep. It was the worst moment of my life, although at the time I felt totally numb and like I was watching someone else. My baby, Richard was so perfect and weighed 1lb 4oz, which was bigger than the sonographer predicted and he had gorgeous long fingers and toes. He was 24+6. I miss him so much.
Last week, we went for a meeting with the consultant who was absolutely great. She gave me a lot of positive hope for the future and went through everything with me. One thing that stuck out for me though was the fact that she said reports had come back from the labs to say my placenta was absolutely fine. I quizzed her on this and she said this can happen and pe is often caused by the mother's and baby's bodies rejecting each other. Is this correct?
Thankyou for taking the time to read my story and my question. It has really helped me to get it all down and although I still feel so raw and devastated, I know you ladies understand.

Emma
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emmie
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PostSubject: Re: diagnosed with hellp, but placenta fine!   Sat 05 Dec 2009, 12:51 pm

I'm sorry, I seem to have posted this in the wrong place. Oops!
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Liz Pidgley
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PostSubject: Re: diagnosed with hellp, but placenta fine!   Sun 06 Dec 2009, 9:40 pm

No problem Emmie!

I will move it & then reply to you!

Best Wishes
Liz

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Every Woman is entitled to understand what happened in her pregnancy when pre eclampsia strikes. I hope to be able to support that process.
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emmie
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PostSubject: Re: diagnosed with hellp, but placenta fine!   Mon 07 Dec 2009, 11:46 am

Thanks Liz.

It has been such a whirlwind time and I just don't know what to do! I just want answers, but from all the reading I've done on the net about the condition, I know I might not get them. I just want to know that my consultant is doing everything possible to find out if there's any underlying conditions and to make sure it doesn't happen again.

I'm getting blood tests and liver and kidney tests. Is this enough?

Sorry for bombarding you. It just feels like the whole thing has been a nightmare and apart from crying and getting angry, doing research is the only thing that keeps me going.

Emma
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*Carole*
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PostSubject: Re: diagnosed with hellp, but placenta fine!   Mon 07 Dec 2009, 3:43 pm

Hi emmie
so sorry to hear about your baby boy, he sounds beautiful. I'm pleased to hear you had a positive meeting with your consultant

Carole
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Caroline
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PostSubject: Re: diagnosed with hellp, but placenta fine!   Mon 07 Dec 2009, 8:28 pm

Hi Emmie,

Am so very sorry to hear about the loss of Richard. I can clearly remember the devastation of these early days and feel so sad that someone else is having to go through it. I found writing things down and asking lots of questions whilst didn't take away any of the pain did help me feel a bit more in control so am glad you've found this site. If I can be of any help to you please just give me a shout.

Love Caroline xxx
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Bell
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PostSubject: Re: diagnosed with hellp, but placenta fine!   Mon 07 Dec 2009, 10:21 pm

Hi Emma,

A warm but sad welcome to the forum. I am so sorry for the loss of your beautiful baby boy Richard and i am so sorry you have also had to suffer the devastation of pre eclampsia too.

I had severe pre eclampsia in 2006 and my baby boy Gerard was still born at 33 wks & 5 days. I have really found this forum very helpful, supportive and comforting. I hope you find the answers that you are looking for here.

Through blood tests afterwards it was found that i had Factor V Leiden. It is a gene mutation that makes the blood clot to much and puts pregnant woman at a higher risk of pre elcampsia. Would be worth while asking your doctor to test you for this and other similar conditions.

Take care

Bell.xx
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jules
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PostSubject: Re: diagnosed with hellp, but placenta fine!   Tue 08 Dec 2009, 10:57 am

Dear Emma,

I've already chatted with you on another website - I really hope you are coping as best you can and start to find some answers

Best wishes

Jules x
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emmie
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PostSubject: Re: diagnosed with hellp, but placenta fine!   Tue 08 Dec 2009, 11:08 am

Thankyou ladies for all your kind words. Just knowing that I can chat to someone who has been through it is a great help. I'm back to see the consultant in Feb after I've had blood tests and kidney tests done. It just feels like I'm getting through the days by waiting for things- first a consultant appointment, then my kidney check, then my blood tests etc, etc.

I also don't know whether to ask for a referal to an apec specialist (found out about this from reading earlier posts) or stay with my consultant who has been really great. Or do you not see an apec specailist until you are pregnant again? Any thoughts or experiences welcome.

Sorry for all the questions and thankyou for reading.

Emma
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Liz Pidgley
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PostSubject: Re: diagnosed with hellp, but placenta fine!   Tue 08 Dec 2009, 12:13 pm

Hi Emmie,

I have PMd you!

Best Wishes
Liz

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