Pre Eclampsia support

For Women & their families who have suffered with Pre Eclampsia, Eclampsia, HELLP syndrome, Pregnancy induced hypertension (PIH) and related conditions.
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 HELLP Syndrome - our story

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Posts : 1
Join date : 2011-03-11

PostSubject: HELLP Syndrome - our story   Tue 15 Mar 2011, 9:47 pm

I had fertility treatment to get pregnant in the first place and when I became pregnant words cannot describe our joy. My husband and I hoped to have a Hypnobirth. Hypnobirth classes are intended to help you have the most natural childbirth possible, using self hypnosis and breathing techniques. The reality was about as far away from this as possible.

Whilst in labour I had significant pain over my bump, like something pulling so tight it took my breath away. When I told the midwife about this pain she replied ' yes dear, you are in labour'. I quickly knew something was wrong as the pain was so intense and constant. My husband got a doctor and fairly quickly I was rushed to High Dependency. I was fairly quickly diagnosed with HELLP Syndrome. I needed a platelet transfusion but there were none on site. Some were ordered from somewhere in Essex but they didn't come and didn't come...

Eventually the doctors decided they needed the baby out. I was allowed to try to push myself but when the baby did not emerged the doctors decided to use forceps. We saw our daughter fleetingly before she was dashed off. I cannot describe the overwhelming feeling of wonder and elation at seeing her. I lost so much blood my blood pressure dropped significantly and I lost consciousness. I could hear the nurses saying my name but I couldn't respond.

Some time later (I have no idea how long, or what happened in between) I gradually opened my eyes. I could see my husband and I knew he had the baby on this lap but I couldn't see her. I didn't need to. All I needed to see was the absolute look of love on his face gazing down at her.
It was a truly terrifying experience for my husband. It has taken time for us both to come to terms with the experience.

We have been so lucky - our baby is a happy, healthy, wonderfully smiley little baby and we are savouring every moment with her. The experience of touching my own mortality has been difficult to get over. The prognosis isn't great, my consultant has told us that the likelihood of it re-occurring is 50/50. If it does, the likelihood of me not surviving is 50/50. I never wanted our daughter to be an only child but that statistic is too frightening and it is not fair to risk her not having a Mother in the hope of giving her a brother or sister. We are incredibly lucky to have her and each other and I plan to makes the most of every day.

Thank you for taking the time to read our story.
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Liz Pidgley
Liz Pidgley

Posts : 702
Join date : 2008-04-23

PostSubject: Re: HELLP Syndrome - our story   Wed 16 Mar 2011, 10:40 am

Hi Charly,

Welcome to the site - Im glad you found us.

The feelings you describe in your story, I am sure will be very familiar to many ladies here, they certainly are to me.
You dont say how long ago you had your daughter or even whether you are thinking about another child, but what I would say is this. You have as you say, been through the most frightening experience and so has your husband. These scars will take a long time to heal but you are making the first moves forward in seeking the answers to your questions.

If I am truthful, I think the statistic of 50/50 of recurrance is incorrect. It sounds like you were given a glib answer from someone who perhaps really is not that sure.
You might find more answers come from getting a copy of your maternity notes as this will document everything that happened to you. It will give you a time line so that you can 'fill in' some of the gaps. I would then suggest asking for an expert opinion. I can give you some names of specialists if you'd like?

What we often find is there are underlying conditions that can be managed but may not show until a woman is pregnant - and nor would they be routinely looked for. If this were true for you, then there is no reason why another pregnancy shouldnt be a positive experience for you.

I am certain many women here will tell you no two pregnancies are alike - even post pre eclampsia and HELLP syndrome.

Im happy to talk all this through with you on the phone if you would like?

For now though, congratulations on the safe arrival of your daughter & I hope that we can offer you the support and information you are looking for.

Warm wishes

Every Woman is entitled to understand what happened in her pregnancy when pre eclampsia strikes. I hope to be able to support that process.
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Forum Friend

Posts : 202
Join date : 2008-05-25

PostSubject: Re: HELLP Syndrome - our story   Mon 21 Mar 2011, 8:12 pm

Hi Charly,

Welcome to the forum. So sorry you had such a hard time in your pregnancy but congratulations on your lovely baby girl.

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Posts : 53
Join date : 2009-10-27

PostSubject: Re: HELLP Syndrome - our story   Tue 05 Apr 2011, 12:30 pm

sorry to hear about your traumatic experince. i would also urge you to get a second opinion, if you do want to consider another child. Meanwhile, enjoy your precious daughter.
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