Hi! Just to update, I discussed referral to an expert with my doctor. As I'm not already pregnant he wouldn't refer me on NHS until I am pregnant (although he was happy to do so any time from positive pregnancy test as per NICE PRECog 3 guideline).
He did however provide me with a referral to see an expert privately now (i.e. before falling pregnant) as I said I'd be prepared to pay and that any recent research developments, tests or trials they might be planning I'd want to know about before falling pregnant, and tbh if the outlook was bad in terms of risk I might be put off altogether but wanted the facts from someone who really knew. Doctor was complementary about my knowledge of PE research and Nice Guidelines!!