Hi i have been lurking around here for a month or so, after being told about the site. A lovely lady called Carole i know from another baby forum has been kindly posting my details on here for advice from Liz, whist i have been poorly in hospital. I thought it would be nice to say thank you and tell my story.
It all started about 6 weeks ago when i was 18 weeks pregnant. I started getting swelling of the ankles. I presumed this was normal as i have never been pregnant b4, but my wise old nanna told me to get checked out as i shouldnt be swelling so early. I left it a couple of days but developed a constant 2 day headache which wouldnt go away, so i rang the out of hours doctor. I had trace protein and raised bp. I was admitted to hospital.
They were absolutley adamant it was not pre e as i was under 20 weeks. I had every test under the sun which all came back normal. Nothing to explain my symptoms. Again, after nearly 2 weeks in hospital, they said it most def was not pre e just unexplained high blood pressure, so discharged me with medication.
A midwife came round every day to check my bp and urine for protein. Straight away i was getting more and more protein, +1 then +2 etc. Again i was admitted at 20 weeks. Swelling was now in my hands, back, legs, face and every day i was waking up looking more and more like the elephant man. Unrecognisable. After daily bloods which showed everything to 'appear' ok, i was told they would just monitor me daily, to see how long the pregnancy would last. Due to several errors on their part, too many to even mention right now, (which we are taking up with PALs) we fought to be transferred to Sheffield hospital as they specialise in maternity and special care for prem babies. We had to try anything and everything for our baby.
Straight away i was put in high dependancy unit and monitored every 15 minutes as my case was that severe. Unfortunately all the consultants and specialist said it was the most severe and rare case of pre e they had ever seen. Within 2 days my protein was off the scale, my bp was rising even on meds and became uncontrollable. I had to be put straight on drips etc to prevent fitting strokes and any other evil pre e symptoms. They think at this point my baby boy passed away inside me as they scanned and the poor darling wasnt moving. Heartbroken doesnt describe it. It feels like your insides are being ripped to shreds and pulled out. It is all so raw and surreal so we are only just coming to terms with it. He was born at 22+5 weeks. Beautiful.
I believe if we hadnt of fought to be transferred to Sheffield i could have died. My bp hit 210/160 in the first hospital. They continued to monitor me every 4/6 hours. Leaving me in a room on my own. While at sheffield once my bp got to 170/110 i was wired up to drips and monitored constantly. I didnt realise how serious i was until a midwife came and sat with me and explained why they were so worried for me. I never knew anything about pre e. It is scary and i have so many questions about the future. xxx